Stories & Highlights

With her trendy outfits, sparkling jewelry and camera-ready makeup, 25-year-old Stephanie is one-of-a-kind and our International Spokesperson. She lights up the hallway as she wheels by waving at her friends.

Like so many mothers, one of Liz Finnegan’s favorite personality traits of her 3 ½-year-old daughter is her zest for life. “It gives me so much peace,” she said. “She is social, loves to sing and dreams about being a princess; I swear we’ve seen ‘Beauty and the Beast’ 150 times,” she laughed.

Rachel Amar, the mother of Max, has faced a difficult journey with her son, which began when Max was born with brain stem atrophy, a diagnosis that doesn’t allow him to breathe, swallow, regulate his temperature or move on his own.